Media

Welcome to our media section. Here, you can find information on our What If … Documentary Series™, information on our Voice Epilepsy™ podcast, view our gallery of photos and learn how to make media inquiries to the I AM A VOICE for Epilepsy Awareness™ campaign.

What If … Documentary Series™

Epilepsy has been described as being “the largest disease with the least public education”. In fact, despite being one of the most common neurological conditions, epilepsy receives the least funding and research dollars and has the least recognition, education and awareness in society. The goal of the What If … Documentary Series™ is to bring about public awareness to the epilepsy crisis and mortality rates of epilepsy in BC, which is an orphaned disease in the province of BC. The What If … Documentary Series™ was born out of necessity to highlight the lack of action from the Provincial Government of British Columbia and include the unsuccessful efforts of the BC Epilepsy Society to meet with government of a period of 26 months. Kim Davidson, the CEO & Executive Director of the BC Epilepsy Society and the Founder of the international I AM A VOICE for Epilepsy Awareness™ campaign is the Creator and Producer of the What If … Documentary Series™. Check out the trailer for the What If … Documentary Series™ below:

Episode One, FAILURE: The Black Mark on Canadian Health Care, was released on October 6th and discusses how and why the adult epilepsy program in British Columbia is second-class and subpar and is the worst adult epilepsy program in Canada. This documentary episode now has over 13,000 views on YouTube and can be viewed below:

Episode Two, PRISONER OF PURGATORY: The Jared Ricks Story, tells the tragic story of Jared Ricks, a young musician from Victoria, BC who passed away on December 29th, 2018 at the age of 23 from Sudden Unexpected Death in Epilepsy (SUDEP). This documentary episode now has over 31,000 views on YouTube and can be viewed below:

Episode Three, UNASHAMED AND UNAFRAID: The Allison Hegedus Story, tells the inspiring story of Allison Hegedus, the President of Vida Spas. Viewers can learn about Allison’s successful career journey, working with Bruce Croxon, formerly of Dragons’ Den, at Vida Spas. Viewers can also learn about Allison’s journey with epilepsy, from her diagnosis at the age of 18, to her having to go out-of-province from British Columbia to Ontario for both diagnostic testing and epilepsy brain surgery due to the shortcomings of the adult epilepsy program in British Columbia. This documentary episode now has over 12,000 views and can be viewed below:

Podcast:

As part of the I AM A VOICE for Epilepsy Awareness™ campaign, the Voice Epilepsy™ podcast series goes over a variety of topics related to epilepsy, including medications, treatment, law, employment surgery, mental health, stress and stigma, among many others. Whether you are a person living with epilepsy or you have a personal or professional interest in epilepsy, the Voice Epilepsy™ podcast is for you! Listen to the podcast here.

Photos:

Media Inquiries:

For media inquiries, please fill out the form below and someone will get back to you as soon as possible:

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